California Dreaming
March 18, 2011 in Access2Care
by Liz Brosnan, Executive Director, Christie’s Place, San Diego, CA
As I read my colleague’s wonderful blog yesterday citing her “enthusiastic trepidation,” Michael Jackson’s song “You Are Not Alone” rang through my head. A moment later I envisioned all 80 convening participants covering that song as a Glee spoof. Naturally, I was leading the chorus as Glee’s substitute teacher Holly Holliday, so adeptly played by Gwyneth Paltrow. While I’m a far cry from Gwyneth, a girl can dream . . . heck, a girl should dream.
The convening commenced with welcoming remarks from AIDS United President & CEO Mark Ishaug. His energy and enthusiasm quickly became contagious and light surfaced at the end of the ominous match tunnel. Day one built solidarity amongst grantees as well as bridged communities from across the country through networking, sharing best practices and strategies. The richness of experience and expertise is best expressed via an excerpt from a poem written by a positive man shared in a documentary this afternoon: “Are you inspired? You should be.”
As we roll up our sleeves even more on day two of the convening, there are a few things that resonate most with me. Rebecca Denison, WORLD Founder, discussed the ingredients that help keep people in care in her talk entitled “The Art of Keeping People in Care.” In a nutshell, that is the essence of this ambitious Access to Care Initiative (A2C). She emphasized the power of the peer, a strategy that is pervasive amongst grantees. I found myself surprisingly excited about evaluation (please don’t stop reading here – it’s really not a dirty word). The national evaluation, an effort led by John Hopkins University, will lift up our work by measuring our collective impact on individuals, systems and communities. Finally, as we embark on the era of healthcare reform, we are uniquely positioned to lead the way. We are pioneers transforming healthcare through this initiative.
A2C represents the power to ignite change through innovation. As we create new pathways to care and strengthen existing ones, it is clear to me that this work will not only build healthier communities, it will also produce models that will be replicated in other sectors.
As a Walmart and Social Innovation Fund (SIF) grantee from San Diego, CA, this initiative has been a game changer for Christie’s Place – and that’s putting it mildly. In San Diego County an alarming 69% of HIV+ women who know their status are not in care. With A2C support we now have the resources to reach those women as well as engage and retain them in care with cutting-edge strategies and by improving our service delivery system. Up until six months ago, I could only dream about having the resources to be able to address and reduce the unmet need that exists for women. SIF is about dreaming, dreaming big. More than that, it’s about turning those dreams into reality. It is turning our “what if” into our “what is.” After all, a girl can dream . . . a girl should dream.
Opportunity – and transformation – knocking!
March 17, 2011 in Access2Care
by Cheryl Roberts Oliver, Executive Director, Saint Louis Effort for AIDS
At 2 this morning, the words “opportunity and transformation” were not on my mind, but after the first day of the AIDS United Access to Care Initiative Grantee Convening, they are at the top of my mind. The sleepless night (one of many) caused by the daunting task of raising funds to match the Social Innovation Funds just granted to Saint Louis Effort for AIDS has also been experienced by representatives of the other nine agencies that were awarded SIF grants. Today I learned that AIDS United must raise $3.6 million matching funds by August, and that none of us are alone in our challenges or our incredible enthusiasm to create innovative programs that will truly transform healthcare models, not just as they relate to HIV/AIDS, but how we approach chronic diseases among vulnerable populations across the country.
Being with my colleagues and sharing information has raised my awareness and my spirits. The “opportunity” is that this is the first time there is a significant chunk of non-HIV money going into the HIV community, and each of the grantees can leverage each federal dollar so that in the end we are tripling the amount. More importantly, the projects that we are implementing will change systems and provide new answers to old problems. I suspect that I may wake up again at 2 a.m. tomorrow, but feel confident now that I will focus on how the work of these public/private partnerships will help us tackle the real causes of illness in our communities.
The convening in New Orleans is the biggest and most complex for AIDS United because it includes the 10 SIF grantees, plus the Positive Charge and Wal-Mart grantees. The messages that come out of this meeting will help shape our communication about how we will get PLWHA into care. Urban, suburban and rural initiatives will be implemented over the next twelve months. At the end, instead of saying “what the heck have we gotten ourselves into” we will be realizing the benefits of having moved HIV/AIDS thinking out of silos and into a learning community. Enthusiastic trepidation, matched by so many caring and creative minds, is bound to be transformative.
Why the Latest Sex Survey Isn’t Surprising…
March 14, 2011 in Policy/Advocacy
…and How it Offers an Argument for Comprehensive Sexuality Education
by Julia Cheng, AIDS United Zamora Fellow
On Thursday March 3rd, the National Center for Health Statistics at the Centers for Disease Control and Prevention (CDC) released the latest report on data from the National Survey of Family Growth. Though the report, “Sexual Behavior, Sexual Attraction, and Sexual Identity in the United States: Data from the 2006-2008 National Survey of Family Growth,” focuses on many aspects of sexuality among the 13,495 males and females ages 15-44 interviewed in the household population of the U.S., the headlines — “For Young, Sex Falls in Survey” (New York Times), “US Teens, Young Adults ‘Doing it’ Less, Study Says” (Washington Post), “More Young People Scorning Sex, Study Finds” (NPR)—emphasize the increase from 22% to 28% in young individuals ages 15-24 reporting no sexual contact with another person. Here is why the report is not surprising and why it demonstrates the importance of comprehensive sexuality education and HIV/AIDS prevention and awareness education.
1. Over the last two decades, there has been a steady decline in vaginal sex among teens
While proponents of abstinence-only-until-marriage programs may point to an increase in refraining from sexual behavior as success of abstinence programs, the decline in vaginal sex among teens has persisted whether or not abstinence programs have mainstream traction. While data surveillance on other types of sexual behavior is relatively new, considering the decline in vaginal sex and the correlation of vaginal sex with other types of sexual activity, it is not surprising that there would also be a decline in all types of sexual behavior among teens.
2. Seventy two percent of individuals 15-24 are having sexual contact
Even if more young people are refraining from sexual behavior, the fact remains that the majority of them are not. According to the 2009 Youth Risk Behavior Survey (YRBS) from the CDC, 5.9% of students had sexual intercourse for the first time before age 13, demonstrating the vast differences of sexual behavior among the national population. Furthermore, both surveys demonstrate that differences exist among social and demographic categories, often correlated with populations disproportionately affected by HIV. Since sexual behavior among young people runs the gamut, comprehensive sexuality education that is open to the versatile needs of young individuals and their sexuality is necessary.
3. Ninety eight percent of 25-44 year olds have had vaginal intercourse; for most, sexual activity begins before 25
If 98% of 25-44 year olds have had vaginal intercourse (as opposed to all types of sexual contact), for the vast majority of the population refraining from sexual contact means delaying. Furthermore, in the cohort 25-29, less than 3.4% and 3.8% of women and men respectively have never had sex, suggesting for most, sexual activity begins before 25. As numerous studies (here, here, here, and here) have demonstrated, sexuality education works best when taught before initiation of sexual activity. Those who have not be provided with sexuality education before they initiate sex, no matter how long they have delayed, are more likely to have unprotected sex and be uninformed of such risks. According to the latest CDC surveillance data on HIV/AIDS, there was an increase of HIV diagnoses for persons ages 15-19 and 20-24, with persons aged 20-24 having the highest percentage (15%) and highest rate (36.9 per 100,000) of all diagnoses. Providing comprehensive sexuality education and HIV/AIDS prevention and awareness information to young adolescents will prepare them for the day when—because almost certainly they will—engage in sexual activity.
4. Abstinence-only-until-marriage only applies to those who marry
Among other reasons, abstinence-only-until-marriage programs are problematic because they discriminate. While certainly many individuals choose not to marry, most LGBT individuals do not have the right to marry legally. By definition, abstinence-only-until-marriage programs either ignore or actively discourage sexual behavior outside of a legal marriage between a man and a woman. The role that stigma and discrimination play in HIV health inequities is broadly recognized and is exists as one of the major points in the National HIV/AIDS Strategy. In the National Survey of Family Growth, 6% of men and 12% of women between 25-44 reported having same-sex sexual contact, while differences between racial and ethnic groups in reporting same-sex sexual behavior seem to underscore the role that stigma still plays. It is ludicrous to believe that ignoring the sexuality of LGBT individuals, especially MSM, can be an effective strategy in preventing HIV.
Abstinence or delaying sexual initiation is a choice that should be included in comprehensive sexuality curriculums, but it should not be the sole choice provided to adolescents who will need the tools to make fully informed decisions. Instead, we must aim to give young individuals the comprehensive education and tools to achieve healthy sexuality and prevent disease and unwanted pregnancy. .
All We Are Sayin’ is Give Female Condoms a Chance
by Jessica Terlikowski, Director of Regional Organizing
Exactly one week before the annual commemoration of National Women and Girls HIV/AIDS Awareness Day, the feminist blog Jezebel responded with intense skepticism to the USA Today headline claiming that female condoms (FCs) are gaining broader acceptance in U.S. cities. Citing the experience of one woman who did not enjoy using FCs and had difficulty locating them, the blogger casts them as nothing but a “sad sack of contraception options.” Several readers’ comments belittled the safer sex tool as novelty or a joke and questioned why anyone would use it. While such mockery of the female condom is not uncommon, it is particularly disappointing when dismissed by those who purportedly support the reproductive health and rights of women and girls.
The female condom has endured more than its fair share of criticism since coming on the scene nearly 20 years ago. It’s ugly. It’s strange. It’s noisy. It’s difficult to use. It’s like having sex with a plastic bag. It’s too expensive. You get the idea. Such negative portrayals of the female condom are nothing new. However, they are ultimately a disservice to the women, men, transpeople, and youth who need and deserve an expanded range of HIV and STI prevention tools. We now have a second chance with the new generation of the female condom, the FC2, to create a more positive conversation. The latest product is stronger, softer, quieter, seamless, hypo-allergenic, and more affordable. In short, it is a vast improvement from its predecessor.
The female condom is currently the lone receptive partner initiated HIV, STI, and pregnancy prevention tool available. And as such, it should be promoted and distributed with the same gusto with which we encourage male condom use. Several studies show that when female condoms are promoted and provided alongside male condoms, the total number of protected sex acts increases. Reduced infections and unintended pregnancies are exactly what we reproductive health, HIV and STI prevention, and sexual health professionals and advocates work to achieve. Yet, many among us are reluctant, and sometimes even loathe, to affirm or to offer female condoms because of bias against female condoms. Nearly 60,000 new HIV infections occur annually in the U.S. More than half of all new HIV infections occur among gay men and men who have sex with men. Twenty-seven percent of the new HIV infections each year occur among women. If we are to stem the HIV epidemic, we must work to expand the current array of prevention options beyond what is currently available. Ongoing advocacy for prevention technologies such as pre-exposure prophylaxis, vaginal and rectal microbicides, post-exposure prophylaxis, vaccines, and testing, treatment, and linkage to care is essential. Simultaneously, we have to ensure greater access to what we know works—male condoms, sterile syringes, and female condoms. The more options we have the better.
A handful of jurisdictions around the U.S. are taking decisive action to dismantle negative biases and increase awareness, access, affordability, and use of female condoms. Chicago, New York City, New York State, San Francisco, Washington D.C., and now Houston equip service providers and front line prevention educators with the skills, language, and materials necessary to effectively promote female condoms within their communities. Following training, an overwhelming majority of prevention educators and service providers become committed female condom advocates. They use positive language when they talk about the female condom. It’s easy to use once you know how to use it. The outside ring increases pleasure for the woman. It helps the receptive partner—male or female—take better control of his or her health.
Six jurisdictions may seem like a small number, but this time last year there were four. And the year before that, there were only two. More comprehensive programs are expected to launch within the year and smaller grassroots initiatives are cropping up across the country. More commercial pharmacies are facilitating greater access to the female condom by charging between $5.99 and $6.99 instead of nearly three times those costs for the old version. March marks one year since CVS pharmacies in Washington, D.C. began stocking the new female condom in all District stores. Additionally, after nearly one year of advocacy, Walgreens is expanding access even further by selling the FC2 in approximately 700 stores across the nation and online.
There is no question that the female condom’s time has come. More work remains to ensure that it makes it into the hands of the people who need it both in the U.S. and around the globe. You can help! On the domestic side, check out the resources and opportunities to get involved with efforts in Chicago, New York City, New York State, San Francisco, Washington D.C. On the global front, check out the Prevention Now Campaign and Universal Access to Female Condoms (UAFC). UAFC is launching a new advocacy campaign to create massive chains of paper doll chains from around the world to demonstrate support for female condoms. They are inviting organizations around the world to write messages on paper dolls about why female condoms are important and needed. The chains will be displayed at the United Nations General Assembly High Level Meeting June 8-10 in New York City. Email Anna Forbes at annaforbes@earthlink.net to find out how you can participate.
Take Charge of Your Lives: A Message from AIDS United to Women and Girls on NWGHAAD
March 10, 2011 in Policy/Advocacy
By Donna Crews, Director, Government Affairs
AIDS United
Today, March 10, we observe National Women and Girls HIV/AIDS Awareness Day (NWGHAAD). This year’s awareness day comes the day after the Senate voted against a funding measure passed by the U.S. House of Representatives for the balance of this fiscal year. The spending plan would devastate women’s health by completely defunding Title X family planning programs, and blocking all Planned Parenthood programs from receiving federal funding. It also proposes drastic cuts to global programs that support women’s health. The bill also bars federal employees from working on the implementation of the Affordable Care Act, which contains many provisions that benefit women directly. AIDS United is pleased that the Senate did not vote to approve the House passed version of H.R. 1, but we are concerned that we are in a political environment that launches such attacks on women’s and girls health care and the total Affordable Care Act.
According to the Office of Women’s Health 280,000 women are currently affected by HIV/AIDS, which is growing among women in the United States. In this political environment, with attacks on women’s and girls’ health care, it is difficult to envision women feeling safe or comfortable protecting themselves from HIV. It is difficult to envision women or girls feeling safe to ask for an HIV test, receive an HIV test result, or receive HIV care. The community must work to ensure that all women can care for themselves and their daughter’s sexual health.
National Women Girls HIV/AIDS Awareness Day gives us the opportunity to encourage all women and girls to learn their HIV status. If they are negative, they need to learn how to maintain their negative status by hearing prevention messages. If they are positive, they need to learn how to access vital care and treatment. The Awareness Day will give organizations that serve women an opportunity to focus on the impact that HIV is having on women, especially women of color. Delta Sigma Theta and Alpha Kappa Alpha (African American sororities) are both educating their members with HIV prevention messages as well as information about the true impact of HIV on the African American female population.
Awareness days help us to focus the country on individual populations so that we can discuss the true impact of HIV on different populations nationwide. AIDS United is pleased after debate on such horrible attacks on women’s sexual health to have an opportunity to encourage women and girls to take charge of their lives and learn their status.
H.R. 1 Threatens HIV/AIDS Programs, AmeriCorps, Social Innovation Fund, and Much, Much More
February 23, 2011 in Policy/Advocacy
by James Schneidewind, Public Policy Associate
On February 19, the House of Representatives slashed — and eliminated in some cases — the federal government’s commitment and obligation to public health funding and initiatives by passing H.R. 1, a funding bill that cuts government spending by $61 billion below FY2010 levels by the end of this fiscal year. The Republican-crafted bill, passed largely along party lines (with two Republicans joining unanimous Democratic opposition to the bill) by a vote of 235-189, makes significant cuts into programs and agencies that directly provide life-saving services and strengthen our nation’s public health infrastructure. HR 1 negatively impacts these programs and agency by doing the following:
* prohibiting the use of funds in the bill from being used to carry out the provisions of the Affordable Care Act (ACA) or to pay the salary of any officer or employee of any federal department or agency with respect to carrying out the provisions of the ACA;
* prohibiting funds from being made available for any purpose to Planned Parenthood Federation of America, Inc., an organization that offers birth control, cancer screenings, HIV testing, and other lifesaving care, or any of its affiliates;
* cutting funding for the National Institutes of Health (NIH) by 5% and funding for the Centers for Disease Control (CDC) by $850 million from FY10 levels;
* re-instituting the ban on federal funding for syringe exchange and ban on the District of Columbia’s use of its local funds; and
* completely de-funding the Corporation for National and Community Service and the programs it funds, which include AmeriCorps and the Social Innovation Fund (SIF), among others.
In addition to drastic reductions in public health investment, the bill would completely eliminate funding for AmeriCorps and SIF, two programs with which AIDS United is connected.
AIDS United’s 16-year-old AmeriCorps program was the first AmeriCorps program focused exclusively on HIV/AIDS, and has seen nearly 600 dedicated individuals through its ranks. In 2009-2010 alone, AIDS United AmeriCorps members provided 7,000 hours of HIV counseling and testing sessions, reached over 12,000 individuals through HIV prevention and education sessions, and delivered quality of life services to over 4,500 individuals living with HIV/AIDS (i.e., food services, case management and emotional support). According to a recent AIDS United study of its AmeriCorps program, nearly 84% of the program’s alumni remain engaged in service for HIV/AIDS, healthcare and social justice causes, and many have gone on to HIV/AIDS, public health and health care careers.
As a returned Peace Corps Volunteer, I can attest to the value of a grassroots organization such as AmeriCorps, a program that has been referred to as the “domestic Peace Corps.” Both Peace Corps and AmeriCorps enable participating volunteers to connect the communities in which they work to resources and skills that would not be available were it not for the volunteer’s presence.
SIF is an initiative that benefits thousands of low-income families by making significant investments into public-private partnerships that work across three issue areas: economic opportunity, healthy futures, and youth development and school support. AIDS United recently received a $3.6 million SIF award for its Access to Care (A2C) Initiative, which will support 10 HIV/AIDS focused organizations throughout the country and leverage millions of additional private dollars locally to improve individual health outcomes, strengthen local services systems, and connect economically and socially marginalized individuals living with HIV to high quality supportive services and health care. De-funding SIF would turn these A2C objectives into impossibilities.
What is most disturbing about H.R. 1 is not only the negative impact its passage will surely have on the health of communities in the interim, but also the potentially devastating implications it will almost certainly have on our country’s long-term health, as well as the long-term health of our economy. Investments in preventative health that involve and empower communities not only result in significantly improved health outcomes nationwide, but will also develop independently and sustainably functioning districts, states, and regions. That vision is one that should resonate across the political spectrum and one that is in direct contradiction with the ideals that emerge from H.R. 1.